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Bridging the gap between researchers and the Life science & Health research infrastructures
Showcasing EATRIS, BBMRI, and ELIXIR tools & resources
- Date: Tuesday 13th - Wednesday 14th June 2023, lunch to lunch.
- Location: Paushuize, Kromme Nieuwegracht 49, Utrecht & online (hybrid meeting)
Introduction
The joint life-sciences research infrastructures (RIs, e.g., EATRIS, BBMRI and ELIXIR) develop and provide services for specific research communities helping to solve bottlenecks and push forward the frontiers of scientific disciplines. In practice we see that the user community is often unaware or insufficiently aware of the services available to them. On the other hand, RIs developing the tools and resources need to stay in touch with a broad range of potential users to get a clear picture of their actual needs.
In the Netherlands, Health-RI aims to be a connector for the national research communities and institutes to get/be optimally aligned with the new developments in the European Research Infrastructures. This workshop is dedicated to showcase several resources developed in Research Infrastructures: context, get feedback on those resources from foreseen users and hence help bridge the (perceived) gap between research infrastructures and the broader user community.
Target audience
The workshop is targeted at (coordinators of) data support professionals who want to get acquainted with tools and resources of the Life Science Research Infrastructures that are available for them and the researchers they support. In addition, they will have the opportunity to provide feedback about the usability of these tools and resources.
Agenda
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DAY 1 June 13, 2023, 12:00-17.00 CEST
12:00 - 13:00 Arrival and lunch for f2f participants
(12:30 Zoom room open for virtual attendants)13:00 - 13:10 Welcome on behalf of Health-RI
Jan-Willem Boiten13:00 - 13:35 Introduction: Reflections about the role of RIs in accelerating research
Niklas Blomberg - director ELIXIR and coordinator EOSC-Life13:35 - 14:15 Theme: Data stewardship Skills FAIR Data stewardship training & capacity building
Celia van Gelder - Health-RI/ELIXIR-NLData stewardship Community building
Mijke Jetten - Health-RI/ELIXIR-NL14:15 - 15:05 Theme: FAIR data management & implementation (part 1) Data Stewardship Wizard (DSW)
Espen Åberg - ELIXIR-NorwayRDMkit – The Research Data Management toolkit for Life Sciences
Munazah Andrabi - ELIXIR-UK15:05 - 15:30 BREAK 15:30 - 17:00 Theme: FAIR data management & implementation (part 2) The FAIR Cookbook: a resource for and by FAIR doers in the life sciences
Tooba Abbassi-Daloii - Maastricht UniversityFAIRsharing - A curated, informative, and educational resource on data and metadata standards, inter-related to databases and data policies
Allyson Lister - FAIRsharing Content & Community Lead, University of OxfordThe MDR: A Metadata Repository for Clinical Research
Steve Canham - ECRINWrap up session 17:00 DRINKS -
DAY 2 June 14, 2023, 9:30-13:00 CEST
9:00 - 9:30 Welcome; coffee and tea
(9:15 Zoom room open for virtual attendants)9:30 - 10:10 Keynote lecture: FAIR patient registries and omics data for modelling disease trajectories
Peter-Bram ‘t Hoen – Radboudumc10:10 - 11:10 Theme: Sensitive data sharing Toolbox for sensitive data sharing
Christian Ohmann - ECRINThe Netherlands ELSI service desk
Miriam Beusink - Health-RIBBMRI ELSI Service
Michaela Mayrhofer - BBMRI-ERIC11:10 - 11:30 BREAK 11:30 - 12:50 Theme: Sharing high-quality biosamples and patient engagement BBMRI-ERIC Quality Management Services and involvement in EU projects
Maike Tauchert - BBMRI-ERIC & EPND projectDutch biobanking standard: Towards harmonized & evidence-based protocols
Hilde Brouwers – Health-RI, Erasmus MCBiosample findability - Catalogue/Directory/local UMCG portal
Marije van der Geest – UMCGPatient engagement in Translational Research – why, how, and when
Florence Bietrix - EATRIS-ERIC13:00 Closure Packed lunch / Lunch