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Bridging the gap between researchers and the Life science & Health research infrastructures

Showcasing EATRIS, BBMRI, and ELIXIR tools & resources

  • Date: Tuesday 13th - Wednesday 14th June 2023, lunch to lunch. 
  • LocationPaushuize, Kromme Nieuwegracht 49, Utrecht & online (hybrid meeting) 

Introduction 

The joint life-sciences research infrastructures (RIs, e.g., EATRIS, BBMRI and ELIXIR) develop and provide services for specific research communities helping to solve bottlenecks and push forward the frontiers of scientific disciplines. In practice we see that the user community is often unaware or insufficiently aware of the services available to them. On the other hand, RIs developing the tools and resources need to stay in touch with a broad range of potential users to get a clear picture of their actual needs.  

In the Netherlands, Health-RI aims to be a connector for the national research communities and institutes to get/be optimally aligned with the new developments in the European Research Infrastructures. This workshop is dedicated to showcase several resources developed in Research Infrastructures: context, get feedback on those resources from foreseen users and hence help bridge the (perceived) gap between research infrastructures and the broader user community. 

Target audience 

The workshop is targeted at (coordinators of) data support professionals who want to get acquainted with tools and resources of the Life Science Research Infrastructures that are available for them and the researchers they support. In addition, they will have the opportunity to provide feedback about the usability of these tools and resources. 

Agenda

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    DAY 1 June 13, 2023, 12:00-17.00 CEST

    12:00 - 13:00 Arrival and lunch for f2f participants
    (12:30 Zoom room open for virtual attendants)
    13:00 - 13:10 Welcome on behalf of Health-RI
    Jan-Willem Boiten
    13:00 - 13:35 Introduction: Reflections about the role of RIs in accelerating research
    Niklas Blomberg - director ELIXIR and coordinator EOSC-Life
    13:35 - 14:15 Theme: Data stewardship Skills
     

    FAIR Data stewardship training & capacity building
    Celia van Gelder - Health-RI/ELIXIR-NL

     

    Data stewardship Community building
    Mijke Jetten - Health-RI/ELIXIR-NL

    14:15 - 15:05 Theme: FAIR data management & implementation (part 1)
      Data Stewardship Wizard (DSW)
    Espen Åberg - ELIXIR-Norway
      RDMkit – The Research Data Management toolkit for Life Sciences
    Munazah Andrabi - ELIXIR-UK
    15:05 - 15:30 BREAK
    15:30 - 17:00 Theme: FAIR data management & implementation (part 2)
      The FAIR Cookbook: a resource for and by FAIR doers in the life sciences
    Tooba Abbassi-Daloii - Maastricht University
      FAIRsharing - A curated, informative, and educational resource on data and metadata standards, inter-related to databases and data policies
    Allyson Lister - FAIRsharing Content & Community Lead, University of Oxford
      The MDR: A Metadata Repository for Clinical Research
    Steve Canham - ECRIN
      Wrap up session
    17:00 DRINKS

     

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    DAY 2 June 14, 2023, 9:30-13:00 CEST

    9:00 - 9:30 Welcome; coffee and tea
    (9:15 Zoom room open for virtual attendants)
    9:30 - 10:10 Keynote lecture: FAIR patient registries and omics data for modelling disease trajectories
    Peter-Bram ‘t Hoen – Radboudumc
    10:10 - 11:10 Theme: Sensitive data sharing
      Toolbox for sensitive data sharing
    Christian Ohmann - ECRIN
      The Netherlands ELSI service desk
    Miriam Beusink - Health-RI
      BBMRI ELSI Service
    Michaela Mayrhofer - BBMRI-ERIC
    11:10 - 11:30 BREAK
    11:30 - 12:50 Theme:  Sharing high-quality biosamples and patient engagement
     

    BBMRI-ERIC Quality Management Services and involvement in EU projects
    Maike Tauchert - BBMRI-ERIC & EPND project

      Dutch biobanking standard: Towards harmonized & evidence-based protocols
    Hilde Brouwers – Health-RI, Erasmus MC
      Biosample findability - Catalogue/Directory/local UMCG portal
    Marije van der Geest – UMCG
      Patient engagement in Translational Research – why, how, and when
    Florence Bietrix - EATRIS-ERIC
    13:00 Closure
      Packed lunch / Lunch

     

Registration

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