Health-RI is an innovative and integrated research infrastructure initiated by BBMRI-NL, ELIXIR-NL, EATRIS-NL, NFU, DTL, Lygature, and Health~Holland. This research infrastructure is initiated to connect the existing biomedical research infrastructures in the Netherlands. The ultimate aim of Health-RI is to function as a one-stop-shop for researchers in the personalized health domain and beyond. Health-RI will interconnect biobanks, medical imaging and data collections allowing for mining and linking, and will provide access to facilities and IT solutions. Besides sharing and connecting resources, Health-RI will support research projects with tools as ethical and legal services, methodologies, data management training, protocols and best practices. To ensure the quality and effectiveness of the infrastructure, all resources must be FAIR (Findable, Accessible, Interoperable, Reusable). By creating the interconnected national Health-RI infrastructure, tools and resources will be at researchers’ fingertips to faster develop novel personalized medicine and health solutions. Visit the Health-RI website for more information about the project.
Connecting health research infrastructures
Lygature is one of the founding partners of the Health-RI project. With its extensive experience in managing complex health infrastructure projects (such as TraIT, PSI and BBMRI-NL) and its excellent program management skills, Lygature is responsible for strategy, program management and communication.
- Strategy. Together with the other founding partners, Lygature initiated Health-RI to interconnect the different research infrastructures and boost innovation in the field of personalized medicine and health. Together with the other partners Lygature is responsible for the strategy of Health-RI.
- Program management. Lygature handles strategic and day-to-day operations including administrative and financial roles. It is responsible for managing and monitoring the program on a day-to-day basis. This includes optimizing internal processes and looking for funding opportunities and collaborations.
- Communication. Lygature is responsible for the communication strategy, stakeholder management and communication tools supporting the Health-RI strategy.
Lygature together with
MG-NL identifies obstacles to use and reuse genomics data
MG-NL, the Dutch ‘mirror group’ of the European Million Genomes Initiative made an inventory of available genome sequences in the Netherlands. A first analysis clearly identified some major obstacles for the use and reuse of genomics data in research. These concern patient consent and linkage of Genome Sequences to relevant clinical data in a privacy preserving manner. In the next months, MG-NL will be developing a roadmap for the future and actively participate in the European 1MG project.
National Health Research Infrastructure brings Personalized Medicine closer
The initiative for a national Health Research Infrastructure (Health-RI) is gaining momentum this year. ZonMw interviewed Explorer Leone Flikweert of Health-RI about the importance of Health-RI.
ZonMw interviewed Explorer ('kwartiermaker') Leone Flikweert of Health-RI about the importance of Health-RI, particularly for the Personalized Medicine program of ZonMw, KWF and Zilveren Kruis.
Treasuring hard won citizens' trust
Panel discussion at this week’s Health-RI Conference (Jan 17, 2019) will formulate ideas and encapsulate opinion on the need for collective decision-making to engender trust and transparency in P4 Health research.