The aim of Health-RI is to accelerate the development of personalized medicine and health solutions by connecting research data infrastructures. Studying and integrating highly diverse collections of longitudinal biomedical data, generated at different hospitals and research centers in the Netherlands, are required to empower researchers in developing more effective personalized health solutions. These data collections are often fragmented and hard to find. Therefore, Health-RI wants to unlock and interconnect the different biomedical sources available.
78
supporting organizations
7
partners
About Health-RI
Health-RI is an innovative and integrated research infrastructure initiated by BBMRI-NL, ELIXIR-NL, EATRIS-NL, NFU, DTL, Lygature, and Health~Holland. This research infrastructure is initiated to connect the existing biomedical research infrastructures in the Netherlands. The ultimate aim of Health-RI is to function as a one-stop-shop for researchers in the personalized health domain and beyond. Health-RI will interconnect biobanks, medical imaging and data collections allowing for mining and linking, and will provide access to facilities and IT solutions. Besides sharing and connecting resources, Health-RI will support research projects with tools as ethical and legal services, methodologies, data management training, protocols and best practices. To ensure the quality and effectiveness of the infrastructure, all resources must be FAIR (Findable, Accessible, Interoperable, Reusable). By creating the interconnected national Health-RI infrastructure, tools and resources will be at researchers’ fingertips to faster develop novel personalized medicine and health solutions. Visit the Health-RI website for more information about the project.
Connecting health research infrastructures
Lygature is one of the founding partners of the Health-RI project. With its extensive experience in managing complex health infrastructure projects (such as TraIT, PSI and BBMRI-NL) and its excellent program management skills, Lygature is responsible for strategy, program management and communication.
- Strategy. Together with the other founding partners, Lygature initiated Health-RI to interconnect the different research infrastructures and boost innovation in the field of personalized medicine and health. Together with the other partners Lygature is responsible for the strategy of Health-RI.
- Program management. Lygature handles strategic and day-to-day operations including administrative and financial roles. It is responsible for managing and monitoring the program on a day-to-day basis. This includes optimizing internal processes and looking for funding opportunities and collaborations.
- Communication. Lygature is responsible for the communication strategy, stakeholder management and communication tools supporting the Health-RI strategy.
Lygature together with
Project updates
-
Launch national servicedesk personalized medicine
Today, the ELSI (Ethical, Legal and Societal Issues) Servicedesk is officially launched. This online Servicedesk offers guidance and answers to the ethical, legal and societal questions around Personalized Medicine research faced by life sciences professionals, policymakers and patients.
-
Million European Genomes Alliance: the Netherlands should join
On behalf of a wide range of stakeholders assembled in Health-RI, Gert-Jan van Ommen (BBMRI-NL) and Ruben Kok (DTL) have sent a letter to the Dutch Minister for Healthcare encouraging the Netherlands to co-sign the international declaration of cooperation ‘towards access to at least one million sequenced genomes in the European Union by 2022’, and actively participate in this Million European Genomes Alliance (MEGA).
This MEGA declaration for delivering cross-border access to their genomic information is a game changer for European health research and clinical practice: sharing more genomic data will improve understanding and prevention of disease, allowing for more personalized treatments (and targeted drug prescription), in particular for rare diseases, cancer and brain related diseases.
The Dutch research community has built up excellent resources and a strong track record in genome-based studies to really bolster this project. The Health-RI network advocates the immediate association of our country with this international initiative.
-
Save the date: 4th Health-RI conference
We are pleased to announce that the 4th Health-RI conference will be held in Utrecht, the Netherlands, on Thursday, January 17, 2019. The program will focus on the future of Health and Medicine and the required support role of science and research infrastructure as innovations around ‘big’ complex data facilitate a vitally functioning and healthy society. Read more.